I opened my mailbox today to an unexpected package from my friend Jodi at Peek-a-boo ICU. I can't wait to show you what was inside but first I want to share a little about this amazing NICU Nurse and advocate in the preemie community!
Jodi has been a nurse for the last 17 years and currently lives out her passion as a NICU Nurse in a Level 3 NICU.
After working in the NICU Jodi realized that parents needed a place to go where they would feel supported and understood. She created a specialized site for these parents, appropriately named Peek-a-boo ICU. Peek-a-boo ICU provides information to parents that have had a premature baby or a baby in the NICU and offers support from those who have been in a similar situation. Her vision is to empower parents with the knowledge necessary to make it through the tough times that come along with having a child in the NICU. Through her website she hopes to make it easier for parents and families to understand some of what they may be experiencing and provide them with knowledge.
Jodi has been an amazing encouragement to me here at Lily's Amazing Grace. She was a huge supporter of our NICU Journal Drive. She donated over 100 pens and bracelets to be added with our journal packages. She even donated matching journals!
Her most recent gift to Lily's Amazing Grace is this unique Preemie Pathway NICU Necklace that she sent to me. As a NICU Mom Jodi offered that I keep the necklace or pass it onto another NICU Mom if I wish.
I have chosen to pass this special necklace onto one of the most amazing preemie Mama's I have ever met. Her name is Christina and she also was blessed with a micro preemie miracle. She too has walked through the shadow of death with her son Max who is now 7 years old.
When Christina and her husband Stefano left the NICU with Max he had a tracheostomy and required around the clock care. Today Max is decannulated, healthy and in the second grade. They still face their challenges with Max but there isn't a day that goes by where they would change a thing to have Max here today. The Martini Family is the true definition of resilient and I am proud to know them.
You can view a video of Max's journey by clicking here.
2 comments:
I was touched to tears after visiting Max's video journey, what a blessing this child is! And Christina is so very deserving of this very special necklace! April, you are doing the work of an angel & we are all blessed that you are a part of our lives. Forever your friend, Niko's momma:)
Max's story is simply amazing. Thank you Traci ♥
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